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Conference Paper: Validation of paediatric quality of life inventoryTM (PedsQLTM) generic core scales 4.0 in Chinese patients with idiopathic scoliosis

TitleValidation of paediatric quality of life inventoryTM (PedsQLTM) generic core scales 4.0 in Chinese patients with idiopathic scoliosis
Authors
Issue Date2019
PublisherThe Hong Kong Orthopaedic Association.
Citation
39th Annual Congress of the Hong Kong Orthopaedic Association 2019, Hong Kong, 2–3 November 2019 How to Cite?
AbstractIntroduction: Health-related quality of life (HRQoL) of patients with idiopathic scoliosis is important, as the disease onset occurs during prepubertal and pubertal growth. Currently there is a lack of generic instrument for these younger patients, and patient-perceived outcome measures have shortcomings. Thus, we aimed to validate the use of the Pediatric Quality of Life Inventory™ (PedsQL™) in local patients with idiopathic scoliosis. Methods: Paediatric patients with and without idiopathic scoliosis were consecutively recruited at outpatient clinics. Patients were asked to complete PedsQL (8-12 years or 13-18 years, depending on age), the youth version of EuroQoL-5D (EQ-5D-Y), and the refined Scoliosis Research Society–22 (SRS-22r) patient questionnaires. Scores were compared between the patients with and without scoliosis. Sensitivity of PedsQL was explored using EQ-5D-Y dimensions, and its correlation with SRS-22r questionnaire was examined. Results: A total of 566 patients were recruited, 63.0% of them with scoliosis. The total mean scores of PedsQL were 90.6 ± 9.6 (8-12 years) and 87.7 ± 10.9 (13-18 years) with no floor/ceiling effects (<15%). Significantly higher PedsQL summary and total scores were detected in the patients with scoliosis than in those without scoliosis. Among patients with scoliosis, all PedsQL scores were lower (p<0.05) for those with problems in the five dimensions of EQ-5D-Y. The PedsQL correlated with SRS-22r only for patients with scoliosis. Conclusion: The PedsQL was sensitive in patients with scoliosis who perceived themselves as having problems in mobility, self-care, doing usual activities, having pain or discomfort, and feeling worried, sad, or unhappy. Together with its minimal floor and ceiling effects and its correlation with SRS-22r, PedsQL was found to be useful in reflecting HRQoL of paediatric patients with idiopathic scoliosis.
DescriptionFree Paper Session VIII: Paediatric Orthopaedics - no. FP8.4
Persistent Identifierhttp://hdl.handle.net/10722/279688

 

DC FieldValueLanguage
dc.contributor.authorCheung, WHP-
dc.contributor.authorWong, CKH-
dc.contributor.authorCheung, JPY-
dc.date.accessioned2019-12-09T06:44:28Z-
dc.date.available2019-12-09T06:44:28Z-
dc.date.issued2019-
dc.identifier.citation39th Annual Congress of the Hong Kong Orthopaedic Association 2019, Hong Kong, 2–3 November 2019-
dc.identifier.urihttp://hdl.handle.net/10722/279688-
dc.descriptionFree Paper Session VIII: Paediatric Orthopaedics - no. FP8.4-
dc.description.abstractIntroduction: Health-related quality of life (HRQoL) of patients with idiopathic scoliosis is important, as the disease onset occurs during prepubertal and pubertal growth. Currently there is a lack of generic instrument for these younger patients, and patient-perceived outcome measures have shortcomings. Thus, we aimed to validate the use of the Pediatric Quality of Life Inventory™ (PedsQL™) in local patients with idiopathic scoliosis. Methods: Paediatric patients with and without idiopathic scoliosis were consecutively recruited at outpatient clinics. Patients were asked to complete PedsQL (8-12 years or 13-18 years, depending on age), the youth version of EuroQoL-5D (EQ-5D-Y), and the refined Scoliosis Research Society–22 (SRS-22r) patient questionnaires. Scores were compared between the patients with and without scoliosis. Sensitivity of PedsQL was explored using EQ-5D-Y dimensions, and its correlation with SRS-22r questionnaire was examined. Results: A total of 566 patients were recruited, 63.0% of them with scoliosis. The total mean scores of PedsQL were 90.6 ± 9.6 (8-12 years) and 87.7 ± 10.9 (13-18 years) with no floor/ceiling effects (<15%). Significantly higher PedsQL summary and total scores were detected in the patients with scoliosis than in those without scoliosis. Among patients with scoliosis, all PedsQL scores were lower (p<0.05) for those with problems in the five dimensions of EQ-5D-Y. The PedsQL correlated with SRS-22r only for patients with scoliosis. Conclusion: The PedsQL was sensitive in patients with scoliosis who perceived themselves as having problems in mobility, self-care, doing usual activities, having pain or discomfort, and feeling worried, sad, or unhappy. Together with its minimal floor and ceiling effects and its correlation with SRS-22r, PedsQL was found to be useful in reflecting HRQoL of paediatric patients with idiopathic scoliosis.-
dc.languageeng-
dc.publisherThe Hong Kong Orthopaedic Association.-
dc.relation.ispartof39th Annual Congress of the Hong Kong Orthopaedic Association 2019-
dc.titleValidation of paediatric quality of life inventoryTM (PedsQLTM) generic core scales 4.0 in Chinese patients with idiopathic scoliosis-
dc.typeConference_Paper-
dc.identifier.emailCheung, WHP: gnuehcp6@hku.hk-
dc.identifier.emailWong, CKH: carlosho@hku.hk-
dc.identifier.emailCheung, JPY: cheungjp@hku.hk-
dc.identifier.authorityWong, CKH=rp01931-
dc.identifier.authorityCheung, JPY=rp01685-
dc.identifier.hkuros308660-
dc.publisher.placeHong Kong-

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