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Article: 'Do language and culture really matter?’: A trans‐disciplinary investigation of cultural diversity in genetic counseling in Hong Kong

Title'Do language and culture really matter?’: A trans‐disciplinary investigation of cultural diversity in genetic counseling in Hong Kong
Authors
Keywordscultural diversity
empirical research
genetic counseling training
health literacy
Hong Kong
Issue Date2021
PublisherSpringer New York LLC. The Journal's web site is located at http://springerlink.metapress.com/openurl.asp?genre=journal&issn=1059-7700
Citation
Journal of Genetic Counseling, 2021, v. 30 n. 1, p. 75-84 How to Cite?
AbstractIn this paper, we present evidence that in counseling culturally diverse patients, differences in spoken language and cultural beliefs of the patients and genetic counseling professionals do not necessarily impede successful counseling. We also highlight sociocultural factors, including socioeconomic background and genetic literacy, that may impact communication in multicultural/ multilingual contexts or when languages other than English are used. While genetic counseling is not short of insights and practical guidelines on sociocultural and language issues, and increasingly, research that employs interviews and surveys, empirical research that draws on authentic interactional data (in the form of video- and audio-recorded interactions and their transcripts) is limited. Our goal here is to assess how needs are communicated among a diverse population using an innovative empirical approach that builds on the analysis of transcribed interactions as the primary data and optimizes trans-disciplinary expertise in linguistics, genetics and genetic counseling. We present data from 42 genetic counseling encounters addressing Sudden Arrhythmic Death Syndrome (SADS) in Hong Kong. We demonstrate the value of the situated analysis of genetic counseling, which focuses on those junctures in the interaction where participants orient to their different linguistic and/or cultural backgrounds as relevant to the ongoing interaction. We further show that participants draw on various interactional resources to negotiate and resolve possible differences or misunderstandings. We highlight the advantages of incorporating authentic (i.e., non-simulated) data into the training of genetic counselors to increase cultural awareness and to provide communication tools (i.e., interactional strategies) they can draw on in their counseling practice.
Persistent Identifierhttp://hdl.handle.net/10722/297130
ISSN
2023 Impact Factor: 1.9
2023 SCImago Journal Rankings: 0.917
ISI Accession Number ID

 

DC FieldValueLanguage
dc.contributor.authorZayts-Spence, OA-
dc.contributor.authorFung, JLF-
dc.contributor.authorChung, BHY-
dc.date.accessioned2021-03-08T07:14:34Z-
dc.date.available2021-03-08T07:14:34Z-
dc.date.issued2021-
dc.identifier.citationJournal of Genetic Counseling, 2021, v. 30 n. 1, p. 75-84-
dc.identifier.issn1059-7700-
dc.identifier.urihttp://hdl.handle.net/10722/297130-
dc.description.abstractIn this paper, we present evidence that in counseling culturally diverse patients, differences in spoken language and cultural beliefs of the patients and genetic counseling professionals do not necessarily impede successful counseling. We also highlight sociocultural factors, including socioeconomic background and genetic literacy, that may impact communication in multicultural/ multilingual contexts or when languages other than English are used. While genetic counseling is not short of insights and practical guidelines on sociocultural and language issues, and increasingly, research that employs interviews and surveys, empirical research that draws on authentic interactional data (in the form of video- and audio-recorded interactions and their transcripts) is limited. Our goal here is to assess how needs are communicated among a diverse population using an innovative empirical approach that builds on the analysis of transcribed interactions as the primary data and optimizes trans-disciplinary expertise in linguistics, genetics and genetic counseling. We present data from 42 genetic counseling encounters addressing Sudden Arrhythmic Death Syndrome (SADS) in Hong Kong. We demonstrate the value of the situated analysis of genetic counseling, which focuses on those junctures in the interaction where participants orient to their different linguistic and/or cultural backgrounds as relevant to the ongoing interaction. We further show that participants draw on various interactional resources to negotiate and resolve possible differences or misunderstandings. We highlight the advantages of incorporating authentic (i.e., non-simulated) data into the training of genetic counselors to increase cultural awareness and to provide communication tools (i.e., interactional strategies) they can draw on in their counseling practice.-
dc.languageeng-
dc.publisherSpringer New York LLC. The Journal's web site is located at http://springerlink.metapress.com/openurl.asp?genre=journal&issn=1059-7700-
dc.relation.ispartofJournal of Genetic Counseling-
dc.rightsThis is a post-peer-review, pre-copyedit version of an article published in [insert journal title]. The final authenticated version is available online at: https://doi.org/[insert DOI]-
dc.subjectcultural diversity-
dc.subjectempirical research-
dc.subjectgenetic counseling training-
dc.subjecthealth literacy-
dc.subjectHong Kong-
dc.title'Do language and culture really matter?’: A trans‐disciplinary investigation of cultural diversity in genetic counseling in Hong Kong-
dc.typeArticle-
dc.identifier.emailZayts-Spence, OA: zayts@hkucc.hku.hk-
dc.identifier.emailFung, JLF: jasflf@connect.hku.hk-
dc.identifier.emailChung, BHY: bhychung@hku.hk-
dc.identifier.authorityZayts-Spence, OA=rp01211-
dc.identifier.authorityChung, BHY=rp00473-
dc.description.naturelink_to_subscribed_fulltext-
dc.identifier.doi10.1002/jgc4.1385-
dc.identifier.pmid33527561-
dc.identifier.scopuseid_2-s2.0-85100076240-
dc.identifier.hkuros321485-
dc.identifier.volume30-
dc.identifier.issue1-
dc.identifier.spage75-
dc.identifier.epage84-
dc.identifier.isiWOS:000613634000001-
dc.publisher.placeUnited States-

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