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- Publisher Website: 10.3390/ijerph18062956
- Scopus: eid_2-s2.0-85102379307
- PMID: 33805808
- WOS: WOS:000639206800001
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Article: Perceived help-seeking difficulty, barriers, delay, and burden in carers of people with suspected dementia
Title | Perceived help-seeking difficulty, barriers, delay, and burden in carers of people with suspected dementia |
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Authors | |
Keywords | service accessibility dementia knowledge affordability carer role strain self-criticism |
Issue Date | 2021 |
Publisher | Molecular Diversity Preservation International. The Journal's web site is located at http://www.mdpi.org/ijerph |
Citation | International Journal of Environmental Research and Public Health, 2021, v. 18 n. 6, p. article no. 2956 How to Cite? |
Abstract | Because of an often complicated and difficult-to-access care system, help-seeking for people with suspected dementia can be stressful. Difficulty in help-seeking may contribute to carer burden, in addition to other known stressors in dementia care. This study examined the relationship between perceived help-seeking difficulty and carer burden, and the barriers contributing to perceived difficulty. We interviewed 110 carers accessing a community-based dementia assessment service for suspected dementia of a family member for their perceived difficulty, delays, and barriers in help-seeking, and carers burden in terms of role strain, self-criticism, and negative emotions. Linear regression models showed that perceived help-seeking difficulty is associated with carer self-criticism, while carer role strain and negative emotions are associated with symptom severity of the person with dementia but not help-seeking difficulty. Inadequate knowledge about symptoms, service accessibility, and affordability together explained more than half of the variance in perceived help-seeking difficulty (Nagelkerke R2 = 0.56). Public awareness about symptoms, support in navigating service, and financial support may reduce perceived difficulty in help-seeking, which in turn may reduce carer self-criticism during the early course of illness. |
Persistent Identifier | http://hdl.handle.net/10722/306304 |
ISSN | 2019 Impact Factor: 2.849 2020 SCImago Journal Rankings: 0.747 |
PubMed Central ID | |
ISI Accession Number ID |
DC Field | Value | Language |
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dc.contributor.author | NG, KM | - |
dc.contributor.author | Leung, DKY | - |
dc.contributor.author | CAI, X | - |
dc.contributor.author | Wong, GHY | - |
dc.date.accessioned | 2021-10-20T10:21:43Z | - |
dc.date.available | 2021-10-20T10:21:43Z | - |
dc.date.issued | 2021 | - |
dc.identifier.citation | International Journal of Environmental Research and Public Health, 2021, v. 18 n. 6, p. article no. 2956 | - |
dc.identifier.issn | 1661-7827 | - |
dc.identifier.uri | http://hdl.handle.net/10722/306304 | - |
dc.description.abstract | Because of an often complicated and difficult-to-access care system, help-seeking for people with suspected dementia can be stressful. Difficulty in help-seeking may contribute to carer burden, in addition to other known stressors in dementia care. This study examined the relationship between perceived help-seeking difficulty and carer burden, and the barriers contributing to perceived difficulty. We interviewed 110 carers accessing a community-based dementia assessment service for suspected dementia of a family member for their perceived difficulty, delays, and barriers in help-seeking, and carers burden in terms of role strain, self-criticism, and negative emotions. Linear regression models showed that perceived help-seeking difficulty is associated with carer self-criticism, while carer role strain and negative emotions are associated with symptom severity of the person with dementia but not help-seeking difficulty. Inadequate knowledge about symptoms, service accessibility, and affordability together explained more than half of the variance in perceived help-seeking difficulty (Nagelkerke R2 = 0.56). Public awareness about symptoms, support in navigating service, and financial support may reduce perceived difficulty in help-seeking, which in turn may reduce carer self-criticism during the early course of illness. | - |
dc.language | eng | - |
dc.publisher | Molecular Diversity Preservation International. The Journal's web site is located at http://www.mdpi.org/ijerph | - |
dc.relation.ispartof | International Journal of Environmental Research and Public Health | - |
dc.rights | This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License. | - |
dc.subject | service accessibility | - |
dc.subject | dementia knowledge | - |
dc.subject | affordability | - |
dc.subject | carer role strain | - |
dc.subject | self-criticism | - |
dc.title | Perceived help-seeking difficulty, barriers, delay, and burden in carers of people with suspected dementia | - |
dc.type | Article | - |
dc.identifier.email | Leung, DKY: daralky@hku.hk | - |
dc.identifier.email | Wong, GHY: ghywong@hku.hk | - |
dc.identifier.authority | Wong, GHY=rp01850 | - |
dc.description.nature | published_or_final_version | - |
dc.identifier.doi | 10.3390/ijerph18062956 | - |
dc.identifier.pmid | 33805808 | - |
dc.identifier.pmcid | PMC7999253 | - |
dc.identifier.scopus | eid_2-s2.0-85102379307 | - |
dc.identifier.hkuros | 326944 | - |
dc.identifier.volume | 18 | - |
dc.identifier.issue | 6 | - |
dc.identifier.spage | article no. 2956 | - |
dc.identifier.epage | article no. 2956 | - |
dc.identifier.isi | WOS:000639206800001 | - |
dc.publisher.place | Switzerland | - |