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Conference Paper: Common Elements in Rare Kidney Diseases: Conclusions from a Kidney Disease: Improving Global Outcomes (KDIGO) Controversies Conference

TitleCommon Elements in Rare Kidney Diseases: Conclusions from a Kidney Disease: Improving Global Outcomes (KDIGO) Controversies Conference
Authors
Keywordschronic kidney disease progression
clinical trials
diagnostics
genetic kidney diseases
practical and integrated patient support
translational care
Issue Date2017
Citation
Kidney International, 2017, v. 92, n. 4, p. 796-808 How to Cite?
AbstractRare kidney diseases encompass at least 150 different conditions, most of which are inherited. Although individual rare kidney diseases raise specific issues, as a group these rare diseases can have overlapping challenges in diagnosis and treatment. These challenges include small numbers of affected patients, unidentified causes of disease, lack of biomarkers for monitoring disease progression, and need for complex care. To address common clinical and patient issues among rare kidney diseases, the KDIGO Controversies Conference entitled, Common Elements in Rare Kidney Diseases, brought together a panel of multidisciplinary clinical providers and patient advocates to address five central issues for rare kidney diseases. These issues encompassed diagnostic challenges, management of kidney functional decline and progression of chronic kidney disease, challenges in clinical study design, translation of advances in research to clinical care, and provision of practical and integrated patient support. Thus, by a process of consensus, guidance for addressing these challenges was developed and is presented here.
Persistent Identifierhttp://hdl.handle.net/10722/316149
ISSN
2023 Impact Factor: 14.8
2023 SCImago Journal Rankings: 3.886
PubMed Central ID
ISI Accession Number ID

 

DC FieldValueLanguage
dc.contributor.authorAymé, Ségolène-
dc.contributor.authorBockenhauer, Detlef-
dc.contributor.authorDay, Simon-
dc.contributor.authorDevuyst, Olivier-
dc.contributor.authorGuay-Woodford, Lisa M.-
dc.contributor.authorIngelfinger, Julie R.-
dc.contributor.authorKlein, Jon B.-
dc.contributor.authorKnoers, Nine V.A.M.-
dc.contributor.authorPerrone, Ronald D.-
dc.contributor.authorRoberts, Julia-
dc.contributor.authorSchaefer, Franz-
dc.contributor.authorTorres, Vicente E.-
dc.contributor.authorCheung, Michael-
dc.contributor.authorWheeler, David C.-
dc.contributor.authorWinkelmayer, Wolfgang C.-
dc.contributor.authorAngelis, Aris-
dc.contributor.authorAntignac, Corinne-
dc.contributor.authorBae, Kyongtae-
dc.contributor.authorBergmann, Carsten-
dc.contributor.authorBleyer, Anthony J.-
dc.contributor.authorBos, Marjolein-
dc.contributor.authorBudde, Klemens-
dc.contributor.authorBull, Katherine-
dc.contributor.authorChauveau, Dominique-
dc.contributor.authorCnaan, Avital-
dc.contributor.authorCornel, Martina-
dc.contributor.authorCosyns, Etienne-
dc.contributor.authorde la Fosse, Jane-
dc.contributor.authorDing, Jie-
dc.contributor.authorGear, Susie-
dc.contributor.authorGoodship, Timothy H.J.-
dc.contributor.authorGoodyer, Paul-
dc.contributor.authorGross, Oliver-
dc.contributor.authorHarr, Nicole-
dc.contributor.authorHarris, Peter C.-
dc.contributor.authorHarris, Tess-
dc.contributor.authorHöfele, Julia-
dc.contributor.authorHogan, Marie C.-
dc.contributor.authorHoorn, Ewout-
dc.contributor.authorHorie, Shigeo-
dc.contributor.authorKashtan, Clifford E.-
dc.contributor.authorKerecuk, Larissa-
dc.contributor.authorKleta, Robert-
dc.contributor.authorKonrad, Martin-
dc.contributor.authorLangman, Craig B.-
dc.contributor.authorMariz, Segundo-
dc.contributor.authorMcKerracher, Gayle-
dc.contributor.authorNieuwenhoven, Annet-
dc.contributor.authorOdland, Dwight-
dc.contributor.authorOlinger, Eric-
dc.contributor.authorOrtiz, Alberto-
dc.contributor.authorPei, York-
dc.contributor.authorPirson, Yves-
dc.contributor.authorRayner, Brian L.-
dc.contributor.authorRemuzzi, Giuseppe-
dc.contributor.authorRenault, Daniel-
dc.contributor.authorSalomon, Rémi-
dc.contributor.authorServais, Aude-
dc.contributor.authorSmith, Richard J.-
dc.contributor.authorSoliman, Neveen A.-
dc.contributor.authorStengel, Bénédicte-
dc.contributor.authorStorm, Marjolein-
dc.contributor.authorTorra, Roser-
dc.contributor.authorvan't Hoff, William-
dc.contributor.authorVargas-Poussou, Rosa-
dc.contributor.authorVroom, Elizabeth-
dc.contributor.authorWanner, Christoph-
dc.contributor.authorYap, Hui Kim-
dc.date.accessioned2022-08-24T15:49:24Z-
dc.date.available2022-08-24T15:49:24Z-
dc.date.issued2017-
dc.identifier.citationKidney International, 2017, v. 92, n. 4, p. 796-808-
dc.identifier.issn0085-2538-
dc.identifier.urihttp://hdl.handle.net/10722/316149-
dc.description.abstractRare kidney diseases encompass at least 150 different conditions, most of which are inherited. Although individual rare kidney diseases raise specific issues, as a group these rare diseases can have overlapping challenges in diagnosis and treatment. These challenges include small numbers of affected patients, unidentified causes of disease, lack of biomarkers for monitoring disease progression, and need for complex care. To address common clinical and patient issues among rare kidney diseases, the KDIGO Controversies Conference entitled, Common Elements in Rare Kidney Diseases, brought together a panel of multidisciplinary clinical providers and patient advocates to address five central issues for rare kidney diseases. These issues encompassed diagnostic challenges, management of kidney functional decline and progression of chronic kidney disease, challenges in clinical study design, translation of advances in research to clinical care, and provision of practical and integrated patient support. Thus, by a process of consensus, guidance for addressing these challenges was developed and is presented here.-
dc.languageeng-
dc.relation.ispartofKidney International-
dc.rightsThis work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.-
dc.subjectchronic kidney disease progression-
dc.subjectclinical trials-
dc.subjectdiagnostics-
dc.subjectgenetic kidney diseases-
dc.subjectpractical and integrated patient support-
dc.subjecttranslational care-
dc.titleCommon Elements in Rare Kidney Diseases: Conclusions from a Kidney Disease: Improving Global Outcomes (KDIGO) Controversies Conference-
dc.typeConference_Paper-
dc.description.naturepublished_or_final_version-
dc.identifier.doi10.1016/j.kint.2017.06.018-
dc.identifier.pmid28938953-
dc.identifier.pmcidPMC6685068-
dc.identifier.scopuseid_2-s2.0-85031716371-
dc.identifier.volume92-
dc.identifier.issue4-
dc.identifier.spage796-
dc.identifier.epage808-
dc.identifier.eissn1523-1755-
dc.identifier.isiWOS:000411211900008-

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