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Article: Threats to personhood from within the family? A study of family caregivers of people with dementia in the Chinese context

TitleThreats to personhood from within the family? A study of family caregivers of people with dementia in the Chinese context
Authors
Keywordsfamily care
kitwood
malignant social psychology
person-centered care
positive person work
Issue Date3-Aug-2023
PublisherSAGE Publications
Citation
Dementia: The International Journal of Social Research and Practice, 2023 How to Cite?
Abstract

Background and Objectives

Dementia care creates ethical and legal dilemmas due to the struggle to balance the quality of care and personhood. Disagreement and conflict in caregiving relationships are common. However, limited attention has been given to particular stressful circumstances, such as care practice and decision disagreements. Moreover, the cultural context of personhood has been overlooked. This study drew on Hong Kong family caregivers’ reports of their cargiving practice and disagreements with care recipients about care-related decisions and their implications for personhood to identify person-centered family care support needs.

Research Design and Methods

We conducted 18 semi-structured interviews with family caregivers of people with dementia in Hong Kong, China. Participants were asked to share their family dementia caregiving experience and practice, specifically regarding decisions and practices that elicited disagreement. We used thematic analysis to analyze data generated from interviews.

Results

Six caregiver practices were identified: exchange for mutual agreement, a foot-in-the-door approach, acceptance of requests/behaviors contrary to the caregivers’ views, infantilization, treachery, and exclusion and imposition.

Discussion and Implications

These findings highlight the importance of providing support and guidelines for person-centered care to promote personhood in the family caregiving context in dementia care.


Persistent Identifierhttp://hdl.handle.net/10722/331128
ISSN
2023 Impact Factor: 2.4
2023 SCImago Journal Rankings: 0.895
ISI Accession Number ID

 

DC FieldValueLanguage
dc.contributor.authorChan, On Fung-
dc.contributor.authorChui, Cheryl Hiu Kwan-
dc.contributor.authorWong, Hoi Yan Gloria-
dc.contributor.authorLum, Terry Yat Sang-
dc.date.accessioned2023-09-21T06:52:59Z-
dc.date.available2023-09-21T06:52:59Z-
dc.date.issued2023-08-03-
dc.identifier.citationDementia: The International Journal of Social Research and Practice, 2023-
dc.identifier.issn1471-3012-
dc.identifier.urihttp://hdl.handle.net/10722/331128-
dc.description.abstract<h3>Background and Objectives</h3><p>Dementia care creates ethical and legal dilemmas due to the struggle to balance the quality of care and personhood. Disagreement and conflict in caregiving relationships are common. However, limited attention has been given to particular stressful circumstances, such as care practice and decision disagreements. Moreover, the cultural context of personhood has been overlooked. This study drew on Hong Kong family caregivers’ reports of their cargiving practice and disagreements with care recipients about care-related decisions and their implications for personhood to identify person-centered family care support needs.</p><h3>Research Design and Methods</h3><p>We conducted 18 semi-structured interviews with family caregivers of people with dementia in Hong Kong, China. Participants were asked to share their family dementia caregiving experience and practice, specifically regarding decisions and practices that elicited disagreement. We used thematic analysis to analyze data generated from interviews.</p><h3>Results</h3><p>Six caregiver practices were identified: exchange for mutual agreement, a foot-in-the-door approach, acceptance of requests/behaviors contrary to the caregivers’ views, infantilization, treachery, and exclusion and imposition.</p><h3>Discussion and Implications</h3><p>These findings highlight the importance of providing support and guidelines for person-centered care to promote personhood in the family caregiving context in dementia care.</p>-
dc.languageeng-
dc.publisherSAGE Publications-
dc.relation.ispartofDementia: The International Journal of Social Research and Practice-
dc.rightsThis work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.-
dc.subjectfamily care-
dc.subjectkitwood-
dc.subjectmalignant social psychology-
dc.subjectperson-centered care-
dc.subjectpositive person work-
dc.titleThreats to personhood from within the family? A study of family caregivers of people with dementia in the Chinese context-
dc.typeArticle-
dc.identifier.doi10.1177/14713012231193144-
dc.identifier.scopuseid_2-s2.0-85166923167-
dc.identifier.eissn1741-2684-
dc.identifier.isiWOS:001040016900001-
dc.identifier.issnl1471-3012-

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