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Article: International collaboration for assessing unmet needs of cancer survivors and family caregivers: Lens of healthcare professionals

TitleInternational collaboration for assessing unmet needs of cancer survivors and family caregivers: Lens of healthcare professionals
Authors
Keywordscancer patients
family caregivers
healthcare professionals'perception
international collaboration
oncology
unmet needs
Issue Date17-Oct-2022
PublisherWiley
Citation
Psycho-Oncology, 2022, v. 32, n. 1, p. 77-85 How to Cite?
Abstract

Objective

Cancer patients and their family caregivers have reported various needs that are not met. Recognition of the unmet needs by healthcare professionals may be a first step to adequately and systematically addressing them. Thus, the International Psycho-Oncology Society Survivorship Online Survey was developed to measure healthcare professionals' evaluation about the unmet needs of their patients and family caregivers around the globe.

Methods

The survey was developed in English and translated to additional 14 different languages. The survey was distributed on the web-based REDCap application to over 50 psycho-oncology societies and their networking platforms as well as social media and to authors who have published in psycho-oncology journals globally.

Results

A total of 1472 participants from 36 countries at least partially completed the survey. Healthcare professionals evaluated needs for managing one's emotional distress and patients' medical care and symptoms as the most common concerns for both patients and their family caregivers across all patient age groups. Less than two-thirds of the participating healthcare professionals reported that their institution had services or programs to address the needs of the patients or caregivers.

Conclusions

Findings suggest several directions for further analyses to provide more specific information that would be readily translated into clinical practices, research, and policy aimed to enhance the quality of life of cancer patients, survivors, and family caregivers around the globe. In addition, this collaborative effort also hints at the importance of establishing international networks to promote equity in care for people touched by cancer worldwide.


Persistent Identifierhttp://hdl.handle.net/10722/340880
ISSN
2023 Impact Factor: 3.3
2023 SCImago Journal Rankings: 1.136
ISI Accession Number ID

 

DC FieldValueLanguage
dc.contributor.authorKim, Youngmee-
dc.contributor.authorTing, Amanda-
dc.contributor.authorCarver, Charles S-
dc.contributor.authorBahcivan, Ozan-
dc.contributor.authorBergerot, Cristiane Decat-
dc.contributor.authorCsaba, Degi-
dc.contributor.authorEstape, Tania-
dc.contributor.authorFujisawa, Daisuke-
dc.contributor.authorGoswami, Savita S-
dc.contributor.authorLam, Wendy Wing Tak-
dc.contributor.authorParvu, Andrada-
dc.contributor.authorShim, Eun‐Jung-
dc.contributor.authorSerpentini, Samantha-
dc.contributor.authorTakeuchi, Emi-
dc.contributor.authorWang, Ashley-
dc.date.accessioned2024-03-11T10:47:59Z-
dc.date.available2024-03-11T10:47:59Z-
dc.date.issued2022-10-17-
dc.identifier.citationPsycho-Oncology, 2022, v. 32, n. 1, p. 77-85-
dc.identifier.issn1057-9249-
dc.identifier.urihttp://hdl.handle.net/10722/340880-
dc.description.abstract<h3>Objective</h3><p>Cancer patients and their family caregivers have reported various needs that are not met. Recognition of the unmet needs by healthcare professionals may be a first step to adequately and systematically addressing them. Thus, the International Psycho-Oncology Society Survivorship Online Survey was developed to measure healthcare professionals' evaluation about the unmet needs of their patients and family caregivers around the globe.</p><h3>Methods</h3><p>The survey was developed in English and translated to additional 14 different languages. The survey was distributed on the web-based REDCap application to over 50 psycho-oncology societies and their networking platforms as well as social media and to authors who have published in psycho-oncology journals globally.</p><h3>Results</h3><p>A total of 1472 participants from 36 countries at least partially completed the survey. Healthcare professionals evaluated needs for managing one's emotional distress and patients' medical care and symptoms as the most common concerns for both patients and their family caregivers across all patient age groups. Less than two-thirds of the participating healthcare professionals reported that their institution had services or programs to address the needs of the patients or caregivers.</p><h3>Conclusions</h3><p>Findings suggest several directions for further analyses to provide more specific information that would be readily translated into clinical practices, research, and policy aimed to enhance the quality of life of cancer patients, survivors, and family caregivers around the globe. In addition, this collaborative effort also hints at the importance of establishing international networks to promote equity in care for people touched by cancer worldwide.</p>-
dc.languageeng-
dc.publisherWiley-
dc.relation.ispartofPsycho-Oncology-
dc.rightsThis work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.-
dc.subjectcancer patients-
dc.subjectfamily caregivers-
dc.subjecthealthcare professionals'perception-
dc.subjectinternational collaboration-
dc.subjectoncology-
dc.subjectunmet needs-
dc.titleInternational collaboration for assessing unmet needs of cancer survivors and family caregivers: Lens of healthcare professionals-
dc.typeArticle-
dc.identifier.doi10.1002/pon.6051-
dc.identifier.scopuseid_2-s2.0-85140051960-
dc.identifier.volume32-
dc.identifier.issue1-
dc.identifier.spage77-
dc.identifier.epage85-
dc.identifier.eissn1099-1611-
dc.identifier.isiWOS:000869664900001-
dc.identifier.issnl1057-9249-

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