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Article: Client Service Receipt Inventory for rare genetic diseases in Hong Kong: abridged secondary publication

TitleClient Service Receipt Inventory for rare genetic diseases in Hong Kong: abridged secondary publication
Authors
Chung, CCYWong, WHSLee, SLChung, BHY
Issue Date1-Feb-2024
PublisherHong Kong Academy of Medicine
Citation
Hong Kong Medical Journal, 2024, v. 30, n. Suppl 1 How to Cite?
Abstract
  1. The Client Service Receipt Inventory for the rare genetic disease population in Hong Kong (CSRI-Ra) was validated to capture both direct and indirect costs of rare diseases from a societal perspective.
  2. Pilot testing of the CSRI-Ra demonstrated moderate to good agreement between utilisation records and electronic patient records, indicating that criterion (concurrent) validity was acceptable.
  3. The CSRI-Ra, alone or in combination with electronic patient records, is valid for health- and social-care planning.

Persistent Identifierhttp://hdl.handle.net/10722/358481
ISSN
1024-2708
2023 Impact Factor: 3.1
2023 SCImago Journal Rankings: 0.261

 

DC FieldValueLanguage
dc.contributor.authorChung, CCY-
dc.contributor.authorWong, WHS-
dc.contributor.authorLee, SL-
dc.contributor.authorChung, BHY-
dc.date.accessioned2025-08-07T00:32:35Z-
dc.date.available2025-08-07T00:32:35Z-
dc.date.issued2024-02-01-
dc.identifier.citationHong Kong Medical Journal, 2024, v. 30, n. Suppl 1-
dc.identifier.issn1024-2708-
dc.identifier.urihttp://hdl.handle.net/10722/358481-
dc.description.abstract<ol><li>The Client Service Receipt Inventory for the rare genetic disease population in Hong Kong (CSRI-Ra) was validated to capture both direct and indirect costs of rare diseases from a societal perspective.</li><li>Pilot testing of the CSRI-Ra demonstrated moderate to good agreement between utilisation records and electronic patient records, indicating that criterion (concurrent) validity was acceptable.</li><li>The CSRI-Ra, alone or in combination with electronic patient records, is valid for health- and social-care planning.</li></ol>-
dc.languageeng-
dc.publisherHong Kong Academy of Medicine-
dc.relation.ispartofHong Kong Medical Journal-
dc.rightsThis work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.-
dc.titleClient Service Receipt Inventory for rare genetic diseases in Hong Kong: abridged secondary publication-
dc.typeArticle-
dc.identifier.volume30-
dc.identifier.issueSuppl 1-
dc.identifier.eissn2226-8707-
dc.identifier.issnl1024-2708-

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