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Article: Pathways to care for people with dementia: An international multicentre study

TitlePathways to care for people with dementia: An international multicentre study
Authors
Keywordsdementia
geriatric psychiatry
health care policy
outcome
pathways to care
Issue Date2020
PublisherJohn Wiley & Sons Ltd. The Journal's web site is located at http://www3.interscience.wiley.com/cgi-bin/jhome/4294
Citation
International Journal of Geriatric Psychiatry, 2020, v. 35 n. 2, p. 163-173 How to Cite?
AbstractObjective: The aim of the present study was to characterize the clinical pathways that people with dementia (PwD) in different countries follow to reach specialized dementia care. Methods: We recruited 548 consecutive clinical attendees with a standardized diagnosis of dementia, in 19 specialized public centres for dementia care in 15 countries. The WHO “encounter form,” a standardized schedule that enables data concerning basic socio‐demographic, clinical, and pathways data to be gathered, was completed for each participant. Results: The median time from the appearance of the first symptoms to the first contact with specialist dementia care was 56 weeks. The primary point of access to care was the general practitioners (55.8%). Psychiatrists, geriatricians, and neurologists represented the most important second point of access. In about a third of cases, PwD were prescribed psychotropic drugs (mostly antidepressants and tranquillizers). Psychosocial interventions (such as psychological counselling, psychotherapy, and practical advice) were delivered in less than 3% of situations. The analyses of the “pathways diagram” revealed that the path of PwD to receiving care is complex and diverse across countries and that there are important barriers to clinical care. Conclusions: The study of pathways followed by PwD to reach specialized care has implications for the subsequent course and the outcome of dementia. Insights into local differences in the clinical presentations and the implementation of currently available dementia care are essential to develop more tailored strategies for these patients, locally, nationally, and internationally.
Persistent Identifierhttp://hdl.handle.net/10722/282014
ISSN
2019 Impact Factor: 2.675
2015 SCImago Journal Rankings: 1.382
ISI Accession Number ID

 

DC FieldValueLanguage
dc.contributor.authorVolpe, U-
dc.contributor.authorAmin, H-
dc.contributor.authorAyinde, OO-
dc.contributor.authorBurns, A-
dc.contributor.authorChan, WC-
dc.contributor.authorDavid, R-
dc.contributor.authorDejanovic, SD-
dc.contributor.authorDjokic, G-
dc.contributor.authorEraslan, D-
dc.contributor.authorFischer, GAL-
dc.contributor.authorGracia‐García, P-
dc.contributor.authorHamdani, SU-
dc.contributor.authorHan, C-
dc.contributor.authorJafri, H-
dc.contributor.authorKallivayalil, RA-
dc.contributor.authorKriekaart, RL-
dc.contributor.authorKua, EH-
dc.contributor.authorLam, LCW-
dc.contributor.authorLecic‐Tosevski, D-
dc.contributor.authorLeroi, I-
dc.contributor.authorLobo, A-
dc.contributor.authorMihai, A-
dc.contributor.authorMinhas, FA-
dc.contributor.authorMistry, H-
dc.contributor.authorOgundele, AT-
dc.contributor.authorOlde Rikkert, MGM-
dc.contributor.authorOlivera, J-
dc.contributor.authorPalumbo, C-
dc.contributor.authorParker, A-
dc.contributor.authorPejuskovic, B-
dc.contributor.authorRiese, F-
dc.contributor.authorRobert, P-
dc.contributor.authorSemrau, M-
dc.contributor.authorStoppe, G-
dc.contributor.authorSudhakar, S-
dc.contributor.authorTirintica, AR-
dc.contributor.authorTofique, S-
dc.contributor.authorTsoi, C-
dc.contributor.authorWolski, L-
dc.contributor.authorYalug, I-
dc.contributor.authorWang, H-
dc.contributor.authorYu, X-
dc.contributor.authorSartorius, N-
dc.date.accessioned2020-04-19T03:34:09Z-
dc.date.available2020-04-19T03:34:09Z-
dc.date.issued2020-
dc.identifier.citationInternational Journal of Geriatric Psychiatry, 2020, v. 35 n. 2, p. 163-173-
dc.identifier.issn0885-6230-
dc.identifier.urihttp://hdl.handle.net/10722/282014-
dc.description.abstractObjective: The aim of the present study was to characterize the clinical pathways that people with dementia (PwD) in different countries follow to reach specialized dementia care. Methods: We recruited 548 consecutive clinical attendees with a standardized diagnosis of dementia, in 19 specialized public centres for dementia care in 15 countries. The WHO “encounter form,” a standardized schedule that enables data concerning basic socio‐demographic, clinical, and pathways data to be gathered, was completed for each participant. Results: The median time from the appearance of the first symptoms to the first contact with specialist dementia care was 56 weeks. The primary point of access to care was the general practitioners (55.8%). Psychiatrists, geriatricians, and neurologists represented the most important second point of access. In about a third of cases, PwD were prescribed psychotropic drugs (mostly antidepressants and tranquillizers). Psychosocial interventions (such as psychological counselling, psychotherapy, and practical advice) were delivered in less than 3% of situations. The analyses of the “pathways diagram” revealed that the path of PwD to receiving care is complex and diverse across countries and that there are important barriers to clinical care. Conclusions: The study of pathways followed by PwD to reach specialized care has implications for the subsequent course and the outcome of dementia. Insights into local differences in the clinical presentations and the implementation of currently available dementia care are essential to develop more tailored strategies for these patients, locally, nationally, and internationally.-
dc.languageeng-
dc.publisherJohn Wiley & Sons Ltd. The Journal's web site is located at http://www3.interscience.wiley.com/cgi-bin/jhome/4294-
dc.relation.ispartofInternational Journal of Geriatric Psychiatry-
dc.rightsPreprint This is the pre-peer reviewed version of the following article: [FULL CITE], which has been published in final form at [Link to final article using the DOI]. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions. Postprint This is the peer reviewed version of the following article: [FULL CITE], which has been published in final form at [Link to final article using the DOI]. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions.-
dc.subjectdementia-
dc.subjectgeriatric psychiatry-
dc.subjecthealth care policy-
dc.subjectoutcome-
dc.subjectpathways to care-
dc.titlePathways to care for people with dementia: An international multicentre study-
dc.typeArticle-
dc.identifier.emailChan, WC: waicchan@hku.hk-
dc.identifier.authorityChan, WC=rp01687-
dc.description.naturelink_to_subscribed_fulltext-
dc.identifier.doi10.1002/gps.5223-
dc.identifier.pmid31657091-
dc.identifier.scopuseid_2-s2.0-85076146950-
dc.identifier.hkuros309755-
dc.identifier.volume35-
dc.identifier.issue2-
dc.identifier.spage163-
dc.identifier.epage173-
dc.identifier.isiWOS:000499662700001-
dc.publisher.placeUnited Kingdom-

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