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Article: Qualitative Study of Chinese Stroke Caregivers’ Caregiving Experience During the COVID-19 Pandemic

TitleQualitative Study of Chinese Stroke Caregivers’ Caregiving Experience During the COVID-19 Pandemic
Authors
Keywordsqualitative research
caregiver burden
pandemic
stroke rehabilitation
caregivers
Issue Date2021
PublisherAmerican Heart Association. The Journal's web site is located at http://stroke.ahajournals.org
Citation
Stroke, 2021, v. 52, p. 1407-1414 How to Cite?
AbstractBackground and Purpose: The coronavirus disease 2019 (COVID-19) outbreak has led to disruptions in health care service delivery worldwide, inevitably affecting stroke survivors requiring ongoing rehabilitation and chronic illness management. To date, no published research has been found on stroke caregiving during the COVID-19 pandemic. This study aimed to explore Hong Kong stroke caregivers’ caregiving experiences in the midst of this difficult time. Methods: Individual semistructured interviews were conducted with 25 Chinese adult primary stroke caregivers from May to June 2020 via telephone. Interviews were transcribed verbatim and analyzed using an interpretive description approach and constant comparison strategy. Results: Five themes of the stroke caregiving experience during the COVID-19 pandemic emerged: care service adversities, additional caregiving workload and strain, threatened relationship between caregiver and stroke survivors, threats to caregivers’ physical and psychological well-being, and needs for continuing caregiving roles. Our findings suggested that caregivers have worsened physical and psychological well-being because of increases in care burden with simultaneously reduced formal and informal support. The relationship between caregiver and stroke survivor was subsequently affected, placing some survivors at heightened risk of abuse. Conclusions: Our study provides valuable findings about stroke caregiving experiences and needs during the pandemic. Delivery of psychological support, telemedicine, and household hygiene resources would be useful to mitigate caregivers’ psychological distress during the COVID-19 pandemic.
DescriptionBronze open access
Persistent Identifierhttp://hdl.handle.net/10722/300543
ISSN
2023 Impact Factor: 7.8
2023 SCImago Journal Rankings: 2.450
ISI Accession Number ID
Grants

 

DC FieldValueLanguage
dc.contributor.authorLee, JJ-
dc.contributor.authorTsang, WN-
dc.contributor.authorYang, SC-
dc.contributor.authorKwok, JYY-
dc.contributor.authorLou, VW-
dc.contributor.authorLau, KK-
dc.date.accessioned2021-06-18T14:53:29Z-
dc.date.available2021-06-18T14:53:29Z-
dc.date.issued2021-
dc.identifier.citationStroke, 2021, v. 52, p. 1407-1414-
dc.identifier.issn0039-2499-
dc.identifier.urihttp://hdl.handle.net/10722/300543-
dc.descriptionBronze open access-
dc.description.abstractBackground and Purpose: The coronavirus disease 2019 (COVID-19) outbreak has led to disruptions in health care service delivery worldwide, inevitably affecting stroke survivors requiring ongoing rehabilitation and chronic illness management. To date, no published research has been found on stroke caregiving during the COVID-19 pandemic. This study aimed to explore Hong Kong stroke caregivers’ caregiving experiences in the midst of this difficult time. Methods: Individual semistructured interviews were conducted with 25 Chinese adult primary stroke caregivers from May to June 2020 via telephone. Interviews were transcribed verbatim and analyzed using an interpretive description approach and constant comparison strategy. Results: Five themes of the stroke caregiving experience during the COVID-19 pandemic emerged: care service adversities, additional caregiving workload and strain, threatened relationship between caregiver and stroke survivors, threats to caregivers’ physical and psychological well-being, and needs for continuing caregiving roles. Our findings suggested that caregivers have worsened physical and psychological well-being because of increases in care burden with simultaneously reduced formal and informal support. The relationship between caregiver and stroke survivor was subsequently affected, placing some survivors at heightened risk of abuse. Conclusions: Our study provides valuable findings about stroke caregiving experiences and needs during the pandemic. Delivery of psychological support, telemedicine, and household hygiene resources would be useful to mitigate caregivers’ psychological distress during the COVID-19 pandemic.-
dc.languageeng-
dc.publisherAmerican Heart Association. The Journal's web site is located at http://stroke.ahajournals.org-
dc.relation.ispartofStroke-
dc.subjectqualitative research-
dc.subjectcaregiver burden-
dc.subjectpandemic-
dc.subjectstroke rehabilitation-
dc.subjectcaregivers-
dc.titleQualitative Study of Chinese Stroke Caregivers’ Caregiving Experience During the COVID-19 Pandemic-
dc.typeArticle-
dc.identifier.emailLee, JJ: leejay@hku.hk-
dc.identifier.emailTsang, WN: tsangwn@hku.hk-
dc.identifier.emailKwok, JYY: jojoyyk@hku.hk-
dc.identifier.emailLou, VW: wlou@hku.hk-
dc.identifier.emailLau, KK: gkklau@hku.hk-
dc.identifier.authorityLee, JJ=rp02239-
dc.identifier.authorityKwok, JYY=rp02455-
dc.identifier.authorityLou, VW=rp00607-
dc.identifier.authorityLau, KK=rp01499-
dc.description.naturelink_to_OA_fulltext-
dc.identifier.doi10.1161/STROKEAHA.120.032250-
dc.identifier.pmid33588588-
dc.identifier.scopuseid_2-s2.0-85103473642-
dc.identifier.hkuros322846-
dc.identifier.volume52-
dc.identifier.spage1407-
dc.identifier.epage1414-
dc.identifier.isiWOS:000639317400035-
dc.publisher.placeUnited States-
dc.relation.projectEcological momentary intervention for stroke caregivers’ psychological support: a randomised controlled trial-

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